Friday, May 4, 2012

Touch Up

Here we go!  May 9, 2012, I have to go in to finish what was started in 2004.  When the left AN came out, Dr. P had to leave a dead piece of tumor on the facial nerve to preserve it.  It did heal up and was fine for a few years, but started fading in and out two years ago. Well, come January 2012 it was pretty much done.

I had a facial EEG a few weeks ago and it showed how week the nerve is and that is dying.  Dr. P. said it is better to do it now verses later. So, Wednesday, we will crack the head and go get that stupid dead tumor and repair the facial nerve. This is the same thing I had done back in 1997 with the right side and it worked beautifully, so I am praying for similar results.

Healing time from surgery, about 2-4 weeks estimated.  Healing  time for the nerve to regenerate and grow, about 6 months to a year. All I know is by the time me and Michael are able to get married, I should be smiling big from inside, out!

With my awesome God, friends, family and fiance', I will conquer this one too! NF2 WATCH OUT!
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4 comments:

  1. RebeccaMay 4, 2012 at 10:18 PM

    Prayers being sent out for you! Good luck! :)

    ReplyDelete
  2. The LevinersMay 9, 2012 at 9:30 AM

    Thanks for keeping us posted girl! Lifting you up!

    ReplyDelete
  3. UnknownAugust 7, 2012 at 7:02 PM

    Hello my name is Bryan and I have NF2 also. Not only that but the worst luck imaginable lol, I was misdiagnosed for 15yrs, I had my first surgery in 2006 two tumors removed from my spine, in 2009 I had an AS removed and almost died and also leftmy face partially paralyzed, muscle atrophy, nerve facial pain and in 2011 I underwent Gamma Knife to take away the pain but the doctor instead altered the plan and radiated my only functioning auditory nerve and now I'm completely deaf.
    I read your blog and wanted to tell you that you don't have to wait 5 or 10yrs for streak cells to restore hearing they are doing it now, try these site:
    Stem Cells of America
    Stem Cell Institute
    RNL bio (texas)
    And 'Beike' stem cell biotech
    I did not get stem cells yet but I am going to CA to meet with a Dr to get stem cell therapy.
    I hope this helps.
    -Bryan

    ReplyDelete
  4. UnknownAugust 7, 2012 at 7:03 PM

    Hello my name is Bryan and I have NF2 also. Not only that but the worst luck imaginable lol, I was misdiagnosed for 15yrs, I had my first surgery in 2006 two tumors removed from my spine, in 2009 I had an AS removed and almost died and also leftmy face partially paralyzed, muscle atrophy, nerve facial pain and in 2011 I underwent Gamma Knife to take away the pain but the doctor instead altered the plan and radiated my only functioning auditory nerve and now I'm completely deaf.
    I read your blog and wanted to tell you that you don't have to wait 5 or 10yrs for streak cells to restore hearing they are doing it now, try these site:
    Stem Cells of America
    Stem Cell Institute
    RNL bio (texas)
    And 'Beike' stem cell biotech
    I did not get stem cells yet but I am going to CA to meet with a Dr to get stem cell therapy.
    I hope this helps.
    -Bryan

    ReplyDelete

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